Protection of Human Research Subjects and Creation of National Bioethics Advisory Commission
Headline: Creates National Bioethics Advisory Commission to Protect Research Subjects
What it does: Agencies that conduct, support, or regulate human-subjects research must review and report on protections and develop ethics education and forums.
- Requires departments to review and report on human subject protections within 120 days.
- Creates a commission that will advise the government on bioethics and genetics.
- Directs agencies to develop education programs and public forums on research ethics.
Summary
This order creates the National Bioethics Advisory Commission and requires federal departments and agencies that conduct, support, or regulate research involving human subjects to review their protections and report the results to the commission.
Agencies must take account of recommendations from the Advisory Committee on Human Radiation Experiments and report within 120 days, and they are asked to develop education programs and public forums on research ethics.
The commission, made of up to 15 presidential appointees, will advise the government on bioethical issues, including protection of research subjects and the management and use of genetic information.
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